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It's tricky as gluten free is a bit of a fad, that can make it difficult for someone with an intolerance or Coeliac disease as things labled as gluten free, might not be you have to check, check and check again. Gluten also hides in medication (even prescribed medication), beauty products , drinks and so on.That's tricky trying to avoid a vitamin most foods they fortify with vitamins as they think we all need extra and it's not always true. Barley Malt is used as a carrier to fortify foods with vitamins and it's not gluten free, often turning what would be gluten free to not being safe! I also avoid vitamin E fortified things as it's often derived from wheat.Love pkw xxx
Nothing serious, just Anemia and thyroid issues. Anemia is the bigger problem which is supposedly caused by heavy menstral bleeding but they never really checked for any internal bleeding, just assumed that was the cause. Anyways, Iron supplements do not work for me so I need iron infusions. All I want to do is sleep and before the infusions, I would have to take several naps a day. I was getting blood work every 2 weeks. Now its once a month. My CBC is always "funky" and no one seems to know why. There are other symptoms but fatigue is the biggest one. I am also always cold, especially my feet, shortness of breath, ect which can be caused by the thyroid or anemia. Plus I think I am allergic to some common food ingredient that is used alot here but not in China. When I was there, I didn't have the stomach issues that I have here.
Quote from: Einhornbaby on December 04, 2017, 05:36:34 AMIm really sorry to hear that that kind of battle is hard, I wish you lots of power to carry on!Im battling Hashimoto-Thyreoiditis and Diabetes next to a couple of other things. Going on is hard sometimes. Wow, that's a lot to be battling! What do you do to make life better /easier? Since I am tired and cold all the time, coffee is a helper for me.
Im really sorry to hear that that kind of battle is hard, I wish you lots of power to carry on!Im battling Hashimoto-Thyreoiditis and Diabetes next to a couple of other things. Going on is hard sometimes.
First thing for me : keeping up with the docs, having my blood tested every 8-12 weeks at least and checking the symptoms. It was hard to accept at first since I had a fear of needles but in the end its better to know whats going on than to speculate what could be In everyday life :Im having sports therapy twice a week which helps me a lot... Cant go each time Id like to since moving hurts too much sometimes but to be honest : it was the only thing that was really helpful yet. I try to eat healthy. I have banned convenience food and artificial sugar (and as pinkkittywinks said, be safe with veggies and cooking from scratch!) and I try to keep myself away from too much stress and drama since it makes the symptoms worse. Im also trying not to think about it all too much and try to enjoy little things. My husband i.e. has a clever trick : whenever I start moaning he will respond with "Did you read the news today" or anything like that to get me to discuss something else to distract me. Works well these days. Distraction is a big thing when you have a bad day in battle!And coffee really is a savior!! <3 Indeed! Keep strong! youre not alone!! If you feel to, Im always open for talking!!
I was diagnosed with Rheumitoid Arthitis when I was 3yrs old. Contrary to popular belief its not a old persons disease and doesn't just effect the joints. Its a serious autoimmune disease that can't cause a lot of damage. I'm legally blind without glasses after it attacked my eyes and had kidney and heart damage as a child. You're not alone hun
Just got diagnosed with Ehler Danlos Syndrome and then the Hypermobility variant, or HMS-EDS....10 years back they told me...Owh you just have Fibromyalgia...here is a leaflet...read it and you don't have to come back because there is no treath for it and if the pain is to much just take OTC Paracetamol!!!!I'm 39...and next time I go to the Reumatologist....I need to speak about getting a wheelchair for times I need to walk to far or when walking is a nono for that day...This dissease effect me on soooo many levels....and because I got my diagnose just before the Christmas Season....I find it difficult to express how this is affecting my life....I'm still in a WTF modus....sorry!